Description
My book is about my personal journey with dealing with lupus and other rare diseases such as Gitelman’s Syndrome and Pyoderma Gangrenosum, and how dealing with an invisible disease. I also address how a lupus patient should stay involved in their care while giving information on several medications and my first-hand experience account of side-effects. This book is a good read for anyone who suffers from lupus, or any other life-long, invisible illness, anyone who knows someone with a life-long illness, or anyone curious.
Nika –
Good read, not done yet, but you should get you a book
Angel –
This book is a must-read not only for lupus warriors and those with chronic or rare illnesses, but also for caregivers, medical professionals, and anyone seeking to better understand the complexities of invisible conditions. It’s more than a book!!! It’s a reminder that resilience is quiet but fierce, and that every story, no matter how painful, can light the way for someone else.
Meme –
This book My lupus Journey Journal provided a deeply informative look into lupus autoimmune disease based off of the author’s personal experiences, while also telling a poignant story that left a lasting emotional impact. As a reader you will feel empathy for the main character Ebonie, her children, as well as her unwavering friends and family. The author’s skillful writing made her experiences come alive, making it impossible not to feel deeply for her struggles and triumphs.” “A powerful and moving read.”
“An unforgettable story that will stay with you long after finishing the last page. Let me just say this book is a MUST read!